Watch my Video Interview on IBS-Life.com

February 20th, 2009

Take a look at this fun new video interview I just did with the folks at IBS-Life.com. In addition to watching me answer questions about Romance, Riches, and Restrooms, you’ll also get to see footage of me joking about IBS in one of my stand-up comedy shows.

If you’re not already familiar with IBS-Life, it’s a relatively new website created by three friends over in the UK - Rick, Kev, and Sian - whose everyday lives are severely restricted by irritable bowel syndrome. (If you think I’m exaggerating about the “severely restricted” part, just watch Rick’s YouTube video and listen to him describe not only the impact that IBS has had on his life, but also the elaborate steps he’s taken to live a less restricted life). Their mission is simple: help other people facing similar challenges by providing concise, reliable information about all aspects of IBS, including practical tips for living with the condition on a day-to-day basis.

After you watch the interview, make sure to take some time to explore the rest of IBS-Life.

- Tim

“Award-Winning” IBS Memoir

May 28th, 2008

It’s time to crack open the Cuervo Gold!!!

And break out some fresh limes…and triplesec, too!!!

Oh yeah - It’s margarita time, baby!

Hey, it probably wouldn’t hurt to pull that ice-cold bottle of jagermeister out of the freezer, either…(no, NOT in the same glass)

…Why? Because it’s time to celebrate!!!!!!

Yes, I am thrilled to share the exciting news that my IBS memoir has won its very first book award!!! Last week, the Independent Publisher Book Awards (aka the “IPPY” awards) announced the results of their 2008 competition…and Romance, Riches, and Restrooms won a Bronze Medal in the national autobiography/memoir category. To see the official results announcement and learn more about the IPPY Awards, click here. Read the rest of this entry »

Prometheus Labs acquires IBS Drug Lotronex from GlaxoSmithKline

November 9th, 2007

Note: Yesterday, I received the following press release from Jeff Roberts, founder of the IBS Patient Action Group (formerly known as the Lotronex Action Group). For the benefit of those who might not know, Lotronex has been described as a godsend treatment by people who suffer from diarrhea-predominant irritable bowel syndrome (IBS-D, for short). When the FDA, citing safety concerns, decided to take Lotronex off the market a few years ago, Jeff and his army of volunteers launched a tireless activist campaign and successfully convinced the FDA to return this IBS treatment to the market. Considering how many people’s lives have been dramatically improved by Lotronex, I thought it made sense to spread the word about this newest development.

-Tim

 

SAN DIEGO and RESEARCH TRIANGLE PARK, N.C., Nov. 7 /PRNewswire/ — Prometheus Laboratories Inc., a specialty pharmaceutical company has signed an agreement with GlaxoSmithKline to acquire exclusive rights to Lotronex(R) (alosetron hydrochloride) Tablets in the United States. Lotronex is the only prescription drug approved by the FDA for use in female patients with severe diarrhea-predominant irritable bowel syndrome who meet the conditions stated in the label. Prometheus will market and sell Lotronex under an exclusive distribution agreement until the acquisition is completed, which is expected in January 2008. Prometheus will continue to offer Lotronex exclusively through the currently established Prescribing Program for Lotronex(TM) (PPL). Lotronex may be prescribed only by physicians who have enrolled in the PPL.

“The acquisition of Lotronex is a significant opportunity for Prometheus and an important next step in continuing to build our portfolio of proprietary pharmaceutical products,” said Joseph M. Limber, President and Chief Executive Officer of Prometheus. “Lotronex fits well with our long-term plans to grow through acquisitions of meaningful therapeutic products and enhances Prometheus’ position as a leading provider of therapeutics and diagnostics for physicians and their patients who suffer from severe gastrointestinal diseases.”

Commenting from GlaxoSmithKline, Stan Hull, Senior Vice President, US Pharmaceuticals said, “We believe that Prometheus is ideally positioned with their strong franchise and relationships with gastroenterologists to market Lotronex and to educate patients and physicians on its proper use.”

Lotronex is indicated for use only in women with severe diarrhea- predominant irritable bowel syndrome who have failed to respond to conventional therapy, whose irritable bowel syndrome, or IBS, symptoms are chronic, and who have had other gastrointestinal medical conditions that could explain their symptoms ruled out. Diarrhea-predominant IBS is severe if in addition to diarrhea the patient experiences at least one of the following symptoms: frequent and severe abdominal pain/discomfort; frequent bowel urgency/fecal incontinence; or disability/restriction of daily activities because of IBS. Clinical studies have not been performed to adequately confirm the benefits of Lotronex in men or patients under the age of 18.

Serious gastrointestinal adverse events have been reported with the use of Lotronex. These events, including ischemic colitis and serious complications of constipation, have resulted in hospitalizations, blood transfusions, surgery and fatalities. Lotronex should be discontinued immediately in patients who develop constipation or symptoms of ischemic colitis. Lotronex should not be resumed in patients who develop ischemic colitis. Physicians should instruct patients who report constipation to immediately contact them if the constipation does not resolve after discontinuation of Lotronex. Patients with resolved constipation should resume Lotronex only on the advice of their treating physician.

About IBS

According to the American Gastroenterology Association, IBS is one of the most common gastrointestinal disorders in the United States affecting more than 58 million people. IBS affects all races and both men and women; however, approximately 4 out of 5 (or 80 percent) of IBS sufferers are women. Although the cause is currently unknown, IBS is characterized by multiple symptoms that include chronic or recurrent abdominal pain and discomfort together with irregular bowel function, such as diarrhea, constipation or alternating diarrhea and constipation. Approximately 30% of women with IBS have diarrhea-predominant IBS.

About Prometheus

Prometheus is a specialty pharmaceutical company committed to developing new ways to help physicians individualize patient care. Prometheus focuses on the treatment, diagnosis and detection of gastrointestinal, autoimmune and inflammatory diseases and disorders. Prometheus’ strategy includes the marketing and delivery of pharmaceutical products complemented by its proprietary, high-value diagnostic testing services. By integrating therapeutics and diagnostic services, Prometheus addresses the continuum of patient care, thereby providing physicians with a comprehensive solution to treat chronic diseases. Prometheus’ corporate offices are located in San Diego, California. Additional information about Prometheus can be found at www.prometheuslabs.com.

About GSK

GlaxoSmithKline is one of the world’s leading research-based pharmaceutical and healthcare companies and is committed to improving the quality of human life by enabling people to do more, feel better and live longer. For more information, visit GlaxoSmithKline at www.gsk.com.

Prometheus Forward-Looking Statements

This press release contains certain “forward looking” statements within the meaning of the Private Securities Litigation Reform Act of 1995. To the extent that any statements made in the news release contain information that is not historical, these statements are essentially forward-looking and are subject to risks and uncertainties. Actual events or results may differ materially from those projected in any of such statements due to various factors. Prometheus cautions that any forward-looking information is not a guarantee of future performance. The acquisition of Lotronex is subject to certain conditions of closing, including the accuracy of specific representations and warranties. Assuming the acquisition closes successfully, the Company may not successfully maintain or grow the market for Lotronex for a variety of reasons. For example, the Company is aware of other products under development and in clinical testing for the treatment of IBS. In addition, to market Lotronex, the Company plans to expand its sales force and the product must be successfully manufactured in compliance with current good manufacturing practices. Under the acquisition agreement, the Company will be required to transfer manufacturing from GlaxoSmithKline to other suppliers over a two to three year period. If unsuccessful, the Company may not have product available to sell. The market for personnel is competitive, and there is no assurance that the Company can recruit new personnel on a timely basis. It is difficult to predict the impact of competitive products and pricing. The number of products available for acquisition is limited and the market for such products is competitive and expensive. There can be no assurance that the Company will successfully complete the acquisition of Lotronex or acquire any other new products.

GlaxoSmithKline Forward-Looking Statements

Under the safe harbor provisions of the U.S. Private Securities Litigation Reform Act of 1995, GSK cautions investors that any forward-looking statements or projections made by GSK, including those made in this announcement, are subject to risks and uncertainties that may cause actual results to differ materially from those projected. Factors that may affect GSK’s operations are described under ‘Risk Factors’ in the Operating and Financial Review and Prospects in the company’s Annual Report on Form 20-F for 2006.

The Prescribing Program for Lotronex and full prescribing information are available by calling 1-888-423-5227 or visiting www.Lotronex.com.

Website: http://www.prometheuslabs.com/ Website: http://www.Lotronex.com/

 

Workin’ for a Living…with IBS

November 4th, 2007

Over the last couple of months, I’ve gotten a flood of emails (okay, maybe not a flood, but definitely a steady trickle) from people looking for an update. Where have you been? What have you been doing? Do you still have IBS? What’s the latest news with Romance, Riches, and Restrooms? So, here it is: the latest goings on in Tim Phelan’s life.

It probably makes sense to start with the biggest and most dramatic development. For the first time in over four years, I am back in the corporate workforce with another one of those “real” jobs (read: full-time). But before any of you extend your condolences or shed a tear on my behalf, I should point out that I’ve been thoroughly enjoying my new employment situation.

Now, some people have been surprised to hear that I’ve returned to the exact same career field (financial sales) that had proven to be so incompatible with my IBS for so many years. But the way I see it, I always felt like I had unfinished business with my old industry (very similar to my experience with the 30X bus line, for those of you who have read Romance, Riches, and Restrooms). I always wondered how my career would have turned out if it hadn’t been for my IBS and my rigid insistence on hiding it from the world. Would I have been successful at my job? Would I have found my career satisfying and fulfilling? These are the sorts of questions that had been sporadically gnawing at me over the last four years.

As you might imagine, my transition from the come-and-go-as-you-please writer’s lifestyle back to the more structured schedule of a corporate setting was not without its adjustments. For starters, even though I’d made light years of progress in learning how to manage my IBS and the anxiety that typically triggers it, I still wasn’t entirely sure how my digestive tract would react to the pressures of a formal sales job, not to mention the early-morning commute each day or the required business travel.

So, knowing that my symptoms were potentially capable of flaring up and thwarting my on-the-job performance at any time, I walked into my first round of interviews and delivered what I considered to be a bold preemptive disclosure. There it was, right at the very top of my resume, listed under most recent work experience:

“Authored Romance, Riches, and Restrooms, a humorous memoir about living with IBS.”

Naturally, that led to my first official interview question: “What exactly does IBS stand for, anyway?”

If I recall correctly, after saying “Very nice to meet you,” I believe my first words to my would-be employer were, “IBS stands for irritable bowel syndrome.”

As I had anticipated, I spent the next five minutes explaining how IBS had seriously compromised my ability to do my job effectively in the past, how I’d taken four years off from the industry to write and promote this book, etc. With my lack of recent industry experience, I was in no position to hide anything. Besides, what would be the benefit of not coming clean? No, I would reveal everything, be myself, and let the chips fall where they may. If they had an issue with the fact that I’d chosen to spend four years writing a book about my unusual odyssey, well, then that wouldn’t be the end of the world. It would only mean that this particular position wasn’t quite the right fit for me.

To my relief (and astonishment, quite frankly), they didn’t seem to bat an eye. Ironically, I was the one who hesitated to immediately pounce on the job offer. I still had to make sure they really knew who they were hiring. I asked my future boss if I could have a word in private and then launched into a series of what must have sounded like unusual questions.

What if I have to get up abruptly and leave a meeting to use the bathroom?

“No problem.”

What if I don’t want to fly on a puddle jumper that doesn’t have a lavatory?

“Well, you can make all your own travel arrangements, so I don’t really see that being an issue at all.”

And so it went, with question after question.

So, how have things turned out since then? Well, for starters, I love the fact that everybody at work knows I have IBS and that I wrote a memoir about how the disorder impacted my life (as an added benefit, several of my colleagues have bought and read my book). The fact that I don’t have to hide my IBS, like I’d unwisely chosen to do at every other job I’d ever had, took a lot of the pressure off. This time around, I could be myself. Not only that, but within a few weeks of my first day on the job, a handful of my new co-workers approached me to confide that they, too, suffer from IBS. So now I’ve even got my own little support group in my office.

All in all, even though it’s only been six months, I couldn’t be happier with my decision to go back into financial services. The people I work with are as professional as they are cool and friendly, and I honestly look forward to going to work each day. I can’t believe how much more enjoyable it’s been to work in this industry this time around.

So, where does that leave things with the book? Well, there have been a lot of exciting developments lately on that front, too. But since that’s a whole ‘nother story, I’ll save that for the next post. Check back in the next week or so, and I’ll fill you in on all the details.

-Tim

Now THAT’S a luxury car…

October 23rd, 2007

In the beginning, they gave us the cigarette lighter. A decade or two later, we were treated to the cupholder. Sure, why not? It’s logical enough. The hot trend over the last few years seems to be the DVD player, conveniently built into the back of the seats no less. Seems a little extravagant, especially when I think back to a childhood spent driving down the Jersey Turnpike in a seat intentionally designed to face the rear window of our wood-paneled Ford station wagon. But what the hell? If watching ”Thomas the Train” and “Sponge Bob” episodes keeps the kids quiet and preoccupied, I suppose that’s got to be a good thing. Now, while I don’t actually remember giving the matter any conscious thought, I instinctively assumed that these mobile IMAX theaters marked the natural end of the road for luxury-good accessories. But that all changed, I’m thrilled to say, when I came across this article on Yahoo today. Safe to say that when these babies start showing up in US showrooms, I’ll be the first to stop by and take a test drive.

Back-seat toilet to end mishaps in traffic jams

Tue Oct 23, 7:30 AM ET

If you’re stuck in traffic when Mother Nature calls, Japan’s Kaneko Sangyo Co. has developed the loo for you.        

The manufacturer of plastic car accessories drew back the curtain on Tuesday on its new portable toilet for cars.

The toilet comes with a curtain large enough to conceal users and a plastic bag to collect waste.

“The commode will come in handy during major disasters such as earthquakes or when you are caught in a traffic jam,” a company official told reporters, according to Kyodo News.

Japan is situated on the Pacific “Ring of Fire” and accounts for about 20 percent of the world’s earthquakes of magnitude 6 or greater.

Drivers stranded by tectonic movements or stuck in tailbacks simply assemble the cardboard toilet bowl, fit a water-absorbent sheet inside and draw round the curtain.

The product is small enough to fit inside a suitcase, the company said.

But prospective customers will have to hang on until November 15, when the firm begins selling the new product online.

IBS CHAT: Real Life Stories and Solutions

July 28th, 2007

During one of my recent visits to the IBS Self-Help & Support Group, I noticed a promotional ad for IBS CHAT: Real Life Stories and Solutionsa new book co-authored by the site’s founder, Jeff Roberts, and Barbara Bradley Bolen. Beneath the image of the book cover, the tagline read, “Your essential guide to IBS Relief.” A bold statement, if ever there was one – especially when you consider that there are literally dozens of IBS self-treatment books in print that claim to have “the” cure for IBS. However, having read this book from cover to cover, I can honestly say that the authors - with no small amount of help from dozens of real-life IBS sufferers - have definitely created a top-notch, unparalleled (and, yes, essential) resource that should be on every IBS sufferer’s book shelf. 

In my opinion, one of this book’s greatest strength (and what sets it apart from so many other IBS self-help books) is that the authors recognize and emphatically acknowledge that IBS is not a one-size-fits-all condition, but rather a complex disorder that so often affects different people in very different and individualized ways. And not surprisingly, there is still no single treatment or cure that works for all sufferers or all symptoms. So it is only fitting that the book gives readers insight into a broad range of treatment options to consider or discuss with their doctors. As anybody with IBS can tell you, getting an official medical diagnosis is rarely the end of your journey. To the contrary, it is often only the beginning of a long, frustrating quest to find which specific treatments will work best for your particular set of symptoms and triggers – a process of elimination, if you will. 

And that brings me to what really makes IBS CHAT so unique and helpful. While it may have the look, feel, organizational structure, and (at over 500 pages) weight of a volume of the Encyclopedia Britannica, the beauty of this book is that its advice comes from actual, real-life IBS sufferers who have chosen to share their personal stories so that other people can benefit from their experiences. Take it from somebody who made the mistake of battling IBS all by myself for far too long – we need all the help and support we can get! And thankfully, that’s exactly what IBS CHAT delivers. 

- Tim    

  

 

 

“Irritated Being Single” - Craig Jex’s IBS Dating Site Making Headlines

July 24th, 2007

Back in November, you may remember that I posted this interview with Craig Jex. At the time, Craig had already launched Irritated Being Single, a dating Web site created exclusively for singles who suffer from digestive disorders like IBS, Crohn’s, and Colitis. While Craig’s motives in starting this ambitious enterprise were largely altruistic - he genuinely does want to make it easier for people with these conditions to find love - he originally created the site so that he could find his own girlfriend, somebody who would understand the sometimes-embarrassing challenges that are part and parcel of the IBS experience.

Well, after last checking in with him, I’m sorry to report that Craig still counts himself among the unattached. However, that’s not to say that all is bleak. Quite the contrary, actually. From a business standpoint, things couldn’t be going better. Not only has the Irritated Being Single site undergone a complete makeover and received a fresh, new professional look, but Craig has also managed to rack up some exciting publicity (on both sides of the Atlantic) for his unique dating service. The opening salvo in this PR campaign was this article in Craig’s hometown paper in the UK, but he’s also been hitting the airwaves. I understand he has already been interviewed by at least one US radio station, with even more scheduled for later this summer. And if that’s not enough, he’s also going to be featured in a British TV documentary that will air some time in August. Don’t worry, I’ll be sure to post the details of that broadcast as soon as I get them. In the meantime, I just want to say “Bravo!” to Craig for keeping the plight of millions of single IBS sufferers around the world in the public spotlight. Way to go!

- Tim

PS - I realize I’ve been quite remiss in updating my blog over the last few months, and I’m hoping to change that in the weeks ahead. There’s an awful lot to catch everybody up on - including (but not limited to) a new job for yours truly, as well as some very exciting new developments in store for Romance, Riches, and Restrooms. So make sure to stay tuned.

 

My Interview on “Writers in the Sky” - Listen to the Podcast

May 9th, 2007

Yvonne Perry recently interviewed me for the latest segment in her long-running Writers in the Sky author podcast series. Posting on her blog, Yvonne promoted our twenty-minute chat by describing it as “one of the most humorous, yet informative interviews I’ve done with any author on my podcast!”

Naturally, I appreciate her kind words. And in all honesty, I’m not blowing smoke when I say that I also had a blast sitting down for this relaxed, candid, and fun Q&A. We covered an awful lot of conversational ground, discussing the uniquely embarrassing hurdles to working and dating with IBS, the broad range of available IBS treatment options (including some of the more absurd and futile approaches I experimented with), and the challenges of breaking into the hyper-competitive publishing industry as a first-time author. In other words, I think this interview has something for everyone. So, go ahead…

Listen to the interview

-Tim

Romance, Riches, and Restrooms Gets “Breakout” Review from POD Critic

April 18th, 2007

Humorous, offbeat IBS memoirs – apparently they’re not just for IBS sufferers anymore. Well, that’s the message that I took away from this latest book review, which was posted this morning by the blogger known as POD Critic. Of course, you’ll want to read the entire critique, but here’s a little preview to tide you over:

“Tim Phelan’s Romance, Riches, and Restrooms treats us to something quite rare: we get to peer into the mind and life of an individual who, through this unabashed memoir, allows us to become intimately familiar with him, and his “functional” disorder. Peppered with humor and the hilarious situations experienced by the author, the book expertly demonstrates the great burden shouldered by IBS sufferers, who must daily walk a tightrope of social scrutiny that no human being should be forced to. 

The author’s struggles with the disorder are penned with a rare precision that is at times enrapturing—given the level of writing—and at times as suspenseful as anything I’ve read in a good mystery. Some scenes will leave you on the edge of your seat…

In short, the book is an impressive contribution that is as important for its subject matter as for its entertainment value.”

It’s worth noting that POD Critic is the lead editor at a small New York publishing house, who, for the record, does NOT suffer from irritable bowel syndrome. And to me, that’s what’s so significant about his review.

Now, I’d always hoped (and half expected, honestly) that my memoir would one day be received enthusiastically by fellow IBS sufferers, and maybe, if I was very lucky, even by their friends and family, too. And, happily, I’ve been extremely fortunate to see those hopes realized in spades, which has been enormously gratifying. Similarly, I’ve been absolutely blown away to find out that the book has built up a cult following among people afflicted with Crohn’s disease and ulcerative colits – honestly, I never saw that one coming.

But, all the while, I had an even bolder vision for how my story might raise public awareness for IBS on an even larger scale. Ignoring many relevant facts – for example, I’d never written a book before and was blissfully ignorant about the depressingly long odds of succeeding in the publishing business – I had somehow managed to convince myself that my quirky little memoir would find a wide audience beyond the IBS community.

The publishing industry uses the term “crossover” for a title that breaks out of its niche and unexpectedly goes on to enjoy broad, mainstream appeal. Don’t get me wrong – I realize that Romance, Riches, and Restrooms is still a long, long (LONG) way from achieving that kind of mass readership. But in my mind, reviews from publishing professionals like POD Critic offer validation that my wild dreams might not be so unrealistic after all.

-Tim

Sophie Lee, creator of IBS Tales, chronicles her own personal battle

March 30th, 2007

If you look at my “Reviews & In the News” page, you’ll notice a new book review for Romance, Riches, and Restrooms written by Sophie Lee. She’s the IBS sufferer in the U.K. who created IBS Tales - a wonderful site where people with IBS can connect with each other by sharing their experiences with what is so often an embarrassing and isolating disorder. I bookmarked her site several years ago and have been a frequent visitor ever since.

Yet, despite spending hours reading through the site’s hundreds of personal stories (I’m masochistically partial to the “Embarrassing Tales” category), I somehow missed what is perhaps the site’s true gem. You see, in addition to running IBS Tales, launching a separate IBS treatment review site, and frequently updating her own blog, Sophie also found the time and energy to write her own E-book. It’s called IBS and Me: Living with Irritable Bowel Syndrome. I recently had the pleasure of reading it.

Wait. I left out one very important point that will only make the case for reading this E-book even more compelling. It’s FREE! That’s right, you can read Sophie’s story on her site or download a PDF file by subscribing to her newsletter. Now, on to the review…

When you first look at the length of this E-book – at 62 pages, it’s certainly compact – you might assume that it’s light on substance. But that would be a mistake because the “good things come in small packages” principle definitely applies here.
Putting her professional experience as a journalist to expert use, Sophie manages to skillfully compress fifteen years of living with constipation-predominant IBS into an engaging, easy-to-read, and yes, quite often funny, “mini-memoir” that just about any IBS sufferer will easily identify with. She carefully selects only the most relevant personal anecdotes, wisely avoids overloading the narrative with too much dry, factual IBS information, and picks just the right spots to lighten up the mood with refreshing doses of dry, self-deprecating British wit that will definitely make you chuckle out loud.

What I liked most about this story is its focus on not only the physical symptoms, but also on the day-to-day psychological mindset and the toll that IBS took on her confidence. As I know from personal experience, once IBS hits your confidence, every aspect of your life becomes exponentially more challenging and difficult to cope with.

The main reason Sophie shared her personal journey in such a public way was because she wanted to let other IBS sufferers know that they are not alone with the life challenges they face, and she also wanted to share all the helpful information she’s accumulated over the years. And she’s really done a terrific job. But don’t take my word for it. Go check it out for yourself! You’ll be glad you did.

- Tim